Madi's Story

My name is Madison Wolff, I am 20 and a Sophomore at ASU where I study Journalism and Mass Communications at the Walter Cronkite School of Journalism. I am hoping to go into the entertainment field or social media industry. I enjoy being with friends, traveling, watching movies, and playing games.

I was a typical developing baby until about 10 months old when I was unable to crawl and bear weight on my legs. My parents got concerned and took me to the doctor. After numerous tests were negative the diagnosis of Spinal Muscular Atrophy(SMA) came just before my 2nd birthday. SMA is the #1 genetic killer of children under the age of 2 with Type 1 being the most severe. There are multiple types and I was diagnosed with Type 2. SMA is a genetic neuromuscular disease that doesn’t allow the nerve cells to innervate the muscles causing them to be weaker than usual. Due to my disease, I use a power wheelchair to get around. It also affects the muscles of breathing making me more susceptible to illness. I have been hospitalized with pneumonia more times than I can count and have had multiple back surgeries. I am currently on one of the treatments available for SMA, which helps to prevent further progression of the disease. I have never let this disease define me but, because of this disease, there are many expenses that insurance doesn’t cover such as an accessible van, lift system, home modifications and more.

I look forward to the Swing Away golf tournament every year and cannot wait for this years! I am humbled by all the support shown to me and our family and cannot thank you enough! We hope to see you at the tournament!

Madi Wolff